Thursday, September 29, 2016
Tanked Up
Logan's blood count tanked just like we expected. He will be getting blood and platelets this morning probably before he even wakes up. Hopefully he is feeling good otherwise.
Wednesday, September 28, 2016
Multitasking
Logan had to find something to do today while they cleaned his room. After kicking around here and there he ended up on the bike in the hallway. He had me grabed his bedside table so he could bike and email at the same time. This kid cracks me up!
So far so good with managing side effects. He is currently maintaining weight and eating well. Some foods and smells bother him but we are finding enough to eat without too much stress. Grandma came by for a lunch visit and brought her special homemade cookies. I think half the batch is already gone. He is currently resting while devouring a new book. We are embracing our boring days at the hospital.
Monday, September 26, 2016
On The Way Down
This morning's CBC showed that Logan's blood count is on the way down. Hemoglobin is 8.5 (anything below 8 is when they do a blood transfusion), Platelets are 21. Absolute Neutrophils 420. He is starting to feel the effects of low hemoglobin (no energy, headaches when he stands up, dizziness) and he is beginning to get mouth, stomach and esophagus sores as a side effect from the chemo. Right now we are encouraging him to eat when he can and pushing fluids while managing his pain.
Friday, September 23, 2016
Last Day of Chemo
Today at 1:30 Logan will receive his last dose of chemo for this round. He has been feeling good and enjoying visits from family and friends.
This morning my sister helped Logan make a K'nex gun that Grandpa and Debbie brought yesterday. They roamed the halls shooting random targets after building the weapon.
He wanted to go to the bone marrow transplant side because their bike has a TV in front... I told him I could do better! I took our portable DVD player and mounted it to the bike using some masking tape. Red neck yes, but effective.
Tuesday, September 20, 2016
Distraction
There was a recall on the mitoxantrone drug that has delayed Logan receiving this second chemo medicine. The doctors here have located a supply from a different manufacture but it has delayed his treatment by a day and a half. They should have the drug at the hospital today and administered to Logan at 1pm.
Logan hasn't had much of an appetite (as per usual with chemo) but so far has been feeling fairly well. He has been keeping busy with books, games, and movies between naps. Distraction is the name of the game right now. If he doesn't dwell on all that is happening he feels much better.
Logan hasn't had much of an appetite (as per usual with chemo) but so far has been feeling fairly well. He has been keeping busy with books, games, and movies between naps. Distraction is the name of the game right now. If he doesn't dwell on all that is happening he feels much better.
Sunday, September 18, 2016
So Far So Good
Logan has been tolerating this round of chemo quite well so far. Today is day 3 of AraC. Tonight at 1:00am he will receive the new Mitoxantrone drug. Hopefully he will sleep through the nasty side effects and be right as rain in the morning. Keeping it boring as best we can.
Friday, September 16, 2016
Chemo Can't Stop This Kid From Growing!
We are back in the clinic today for a procedure before they admit Logan to the hospital for more chemo. At the height and weigh station (they do this EVERY time he comes to clinic) the nurse said Logan is over 5 foot 7 inches in height. I said "NO WAY!" He was 5'6" and change just a few weeks ago so I had them measure him again. Same result. Then I got under the same measuring device to double check. My baby is taller than me!!!! What the heck!!??!! All these chemo drugs can't stop this kid from growing I guess!
Last night, Logan enjoyed racing his RC car around the cul de sac. No action shots for that since that little car can MOVE but as you can see by the smile on his face Logan enjoyed his last night home before heading back to the hospital.
Today here in the clinic Logan received two chemo spinal injections and is currently recovering while waiting for a room upstairs in the hospital. He will start the IV chemo here shortly. For those of you keeping up, he is doing AraC twice daily for 4 days (starting today) and Mitoxantrone 4 days (doubling up on the last two days of the AraC) for a total of 6 days chemo. They were concerned about his heart because the Mitozantrone can cause heart damage so he had a Echo and EKG yesterday. All the chemo from the past 7 years has taken a toll on his heart already, but they determined that his heart is strong enough for the Mitozantrone. Keeping our fingers crossed for no complications and a successful fight against this resistant cancer. If this new drug knocks back the leukemic cells Logan can receive the bone marrow transplant sometime in November.
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